16.1. Syringomyelia information page and on-line support
ASAP works to educate and inform the public and health professionals on Chiari (CM), syringomyelia (SM) and related disorders. ASAP provides support in a variety of ways including helping people locate support groups in their area, organizing virtual support groups, offering networking opportunities including a message board, listserv and chat room.
Syringomyelia is an uncommon but disabling complication of SCI. Although more than half of all people with SCI develop a cyst in the spinal cord at the injury site, only about 4% develop syringomyelia, in which the cyst fills with fluid and expands.
Syringomyelia Factsheet/NINDS , The National Institute of Neurological Disorders and Stroke, National Institutes of Health, provides factual, accurate information on this disorder.
Siringomielia (en espanol)