1.1. FES Equipment-Myolyn

Myolyn's Myocycle/Get The Facts
Contact page & Phone

After a spinal cord injury, many people find themselves needing help for a lot of basic daily activities. Even those who can do most things independently still miss the mobility and spontaneity they used to have, and many start to worry about the long-term health consequences of sitting in a wheelchair.

We all hope for a cure. But while we’re waiting for a cure that still seems elusive, real people need real help today.

What if we could restore the lost functions of paralysis, one by one? Hand function. Sexual function. Bladder function. Trunk stability. Standing. Stepping. Technologies exist that have the potential to do this; they’re called neuromodulation systems. We have a third generation design that rests on more than 30 years of research, and we are ready to start studying it in people so we can bring it to market.

1.2. FES Equipment-Restorative Therapies

Restorative Therapies  —  iFES Systems for Rehabilitation at Clinics and at Home
Contact Form

At Restorative Therapies, we offer industry-leading iFES systems for people with neurological impairments across the full continuum of care. Our iFES systems are evidence of our unwavering commitment to innovation backed by years of sound clinical research.

Since 2005 Restorative Therapies systems have been cleared by the FDA to:

• Reduce muscle atrophy
• Reduce muscle spasms
• Improve local circulation
• Maintain or increase range of motion
• Facilitate muscle re-education

Our iFES systems are physician-prescribed, FDA Class II medical devices.

Please see Attached Referal form, Factsheet Patient handout

1.3. FES Promotes Recovery in Chronic SCI

FES article in Science Daily

4 March 2013

Functional Electrical Stimulation Cycling Promotes Recovery in Chronic Spinal Cord Injury

A new study by Kennedy Krieger Institute's International Center for Spinal Cord Injury (Epub ahead of print) finds that long-term lower extremity functional electrical stimulation (FES) cycling, as part of a rehabilitation regimen, is associated with substantial improvements in individuals with chronic spinal cord injury (SCI). Improvements include neurological and functional gains, as well as enhanced physical health demonstrated by decreased fat, increased muscle mass and improved lipid profile.

1.4. Transcutaneous Stimulation

NeuroRecoveryTechnologies group reports success in returning voluntary motor function in five men living with chronic, complete SCI through non-invasive transcutaneous stimulation.

The company is focused on the development of two unique spinal cord neuromodulator systems (electric stimulation devices) sharing platform technology to address a significant unmet clinical need. The first is a non-invasive external system, classified by the FDA as a Class II De Novo 510k, for those patients with partial to complete paralysis. The second system is implantable, a PMA Class III device, used to optimally treat individuals with severe incomplete & complete paralysis. Each system is composed of complementary electrodes plus a wireless pulse generator containing proprietary circuitry and algorithms with our discovered formula for reactivating neural circuits. The systems facilitate customized programming and independent control of multiple stimulation sites.

2.1. SCI2020-Decade of Disruption in Research-Event Video Archived

SCI 2020 Videos Now Available
The National Institutes of Health (NIH) has posted videos from the conference SCI 2020: Launching a Decade for Disruption in Spinal Cord Injury Research. The February 2019 conference featured presentations and panel discussions on current and future opportunities for research and development in SCI. Members of the NIDILRR-grantee community participated in the conference, including a keynote presentation from Michael Boninger, MD, principal investigator for the University of Pittsburgh Model Center on SCI. In addition to the videos, NIH has posted poster session abstracts and reference lists for the keynote presentations.

April 2019

2.2. Understanding Research: Those Scary Statistics

Understanding Research:  Those Scary Statistics is an educational brochure developed by Craig Hospital for people with spinal cord injury. Revised 2015.

2.3. Understanding Research: Medical & Research Articles

Ever have trouble making sense out of articles in medical, scientific, and research magazines? This brochure from Craig Hospital will give you some pointers as you try to wade through all the techno-jargon you find. Revised 2015.

2.4. The Controversy Over Walking & Research

SCI Forum presentation "To Walk or Roll: The Controversy over Walking and Research". Presented on May 17, 2012 at the University of Washington Medical Center by the Northwest Regional SCI System, Department of Rehabilitation Medicine, University of Washington.

Will I ever walk again?" This is frequently the first question a patient with a new spinal cord injury asks. A focus on walking is normal after what can be a devastating injury. However, over time the focus on walking often fades and other issues that impact daily living move to the top of the wish list. Is there peril if individuals with SCI and researchers focus on walking too much? Where should we be putting our scant SCI research dollars? Our guest speaker, Michael Boninger, MD, examines this complex issue from the standpoint of both a dedicated physiatrist who has worked with SCI patients for over 20 years and a prominent researcher seeking solutions to the many problems caused by these injuries. Dr. Boninger is professor and chair of the Physical Medicine and Rehabilitation Department at the University of Pittsburgh, where he also serves as the medical director of the Human Engineering Research Laboratory and director of the University of Pittsburgh Model Center on Spinal Cord Injury.

 

3.1. Model Systems Knowledge Translation Center

The Model Systems Knowledge Translation Center (MSKTC) summarizes research, identifies health information needs and develops systems for sharing information for the National Institute on Disability, Independent Living, & Rehabilitation Research (NIDILRR) model systems programs in traumatic brain injury, spinal cord injury and burn injury.

3.2. National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)

National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)

 

NIDILRR is a federal government grants-making agency that sponsors grantees to generate new disability and rehabilitation knowledge and promote its use and adoption. 

 

3.3. NIH Clinical Research Trials and You

NIH has created a new website, NIH Clinical Research Trials and You (clinicalresearchtrials.nih.gov) to help people learn more about clinical trials, why they matter and how to participate.

Research has shown that some of the greatest challenges to recruitment of volunteers are the lack of general knowledge about what trials involve, where they are carried out, and who may participate. The new, centralized resource will make it easier for the public and health professionals to learn about clinical trials and how people can participate.

Visitors to the site will find information about:
. the basics of clinical trial participation
. experiences from clinical trial volunteers and explanations from researchers
. links on how to search for a trial or enroll in a research matching program

In addition, health care professionals can read about evidence-based strategies for talking with patients about trials, and find audience-tested posters to help promote trials in clinics and offices

4.1. Experimental Treatments for Spinal Cord Injuries: What you should know if you are considering participation in a clinical trial.

Click here to download the easy-to-read, version 3 of the booklet, available through ICORD (International Collaboration on Repair Discoveries), for people with spinal cord injury, their families, friends and caregivers. 

4.2. How do I learn if a therapy is valid and safe

For any therapy or treatment you are considering, check to see if it is safe:

• Look for any peer reviewed published papers on the treatment.  Peer review is important. This means that the scientist's/physician's work has been reviewed by peers (one with equal or some knowledge) in the field and has been approved for publishing.  These include 'reviewed papers' from around the world.
• There should be background studies, pilot studies or pre-clinical studies published.  The best compilation of medical studies is maintained at The National Institutes of Health, Library of Medicine.  The link to the free library access is: http://www.ncbi.nlm.nih.gov/pubmed
• 'Reviewed' papers will be available even if the treatment may be 'brand new' or 'novel'

'Scam' or non-validated therapies should raise a Red Flag of caution. 

• If you are considering such a therapy or treatment, you should request copies of published previous work AND references of the publishing (ie. Journal, date, publication) which is typically called 'pre-clinical' or pilot studies.

Many of the 'scam' treatments have not been published or reviewed

4.3. Stem Cell Treatments: What to Ask

The International Society of Stem Cell Research provides information for people considering stem cell treatment at the website, "A closer look at stem cell treatments" including, Stem Cell Treatments: What to Ask. There is certain information you should look into if you are considering a stem cell treatment, including a detailed description of the treatment and the science that supports it, the expected outcome and the risks.

4.4. 60 Minutes expose on stem cell program fraud

This a cautionary tale of a fraudlent stem cell program featured on CBS-60 Minutes where unrealistic improvements are promised and large sums required for un-proven stem cell treatments (aired 2/27/11).

4.5. Video: Geron Stem Cell Clinical Trial Participant Shares Her Experience

Katie Sharify is one of five people with spinal cord injuries to participate in the world's first clinical trial testing human embryonic stem cells. On November 14th, she spoke about her clinical trial experience with a group of scientists who were meeting to discuss the best ways of advancing stem cell clinical trials. CIRM communications manager Amy Adams interviewed Sharify and her doctor, Stephen McKenna.

• Watch the video
• Read blog about the session

5.1. Institute for Functional Restoration

The Institute for Functional Restoration or IFR, was created at Case Western Reserve University (CWRU) to make available interventions developed on campus that address the functions lost due to spinal cord injury or other paralytic conditions.  Much different than a research organization, the IFR chooses programs that have been shown to be viable solutions for patients and then navigates them through the pathway to availability outside of a research trial.  The Institute is funded by a combination of grants, philanthrophy and reimbursement.

5.2. SCITrials.org

SCITRIALS.ORG is a new research trials site, which was created for and by the spinal cord injury community to connect researchers and people living with SCI. 

It was created to address some of the challenges users were experiencing on existing SCI trial sites, by providing information on trials specific to SCI. Trials are filtered to contain studies from legitimate universities, research centers, and hospitals.  Additionally, the site allows the user to save a search unique to their preferences and then receive email updates when relevant trials become available in their area.  

To access the continually updated information in the site, simply sign up to use the free platform at SCITRIALS.ORG. We encourage site users to spread the news about this new tool throughout their networks.

SCITRIALS.ORG is a joint initiative of the North American Spinal Cord Injury Consortium (NASCIC) and www.endParalysis.org – with development provided by fuelService.org   

5.3. SCITrialsFinder.net

The goal of the SCITrialsFinder.net website is to allow individuals with spinal cord injury (SCI), their families and health care professionals to get common language information about clinical trials as developed by experienced clinical investigators (called curations or curated trials). SCITrialsFinder.net  has started curating trials looking for participants for studies of interventions targeting improvement of neurological and related functional outcomes, currently underway in North America, Europe and Australia. In addition to the curated trials, users can also read about all SCI related trials from clinicaltrials.gov. 

5.4. ClinicalTrials.gov

ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals.

5.5. California Institute for Regenerative Medicine

California Institute for Regenerative Medicine (CIRM)

CIRM, California's Stem Cell Agency, was created by the voters of California in 2004 when they passed Proposition 71, which authorized $3 billion in funding for stem cell research in California. The agency funds stem cell research at institutions and companies throughout California with the goal of developing new therapies for deadly diseases and disorders. 

5.6. SCIRE: SCI Research Evidence

Spinal Cord Injury Research Evidence (SCIRE):  The SCIRE Project is a Canadian collaboration between scientists, clinicians and consumers. SCIRE covers a comprehensive set of topics relevant to SCI, including research in SCI in both the acute and rehabilitation stages.  They have also created some resources for consumers with SCI.

5.7. UAB Spinal Cord Injury Model System Information Network

The University of Alabama at Birmingham Spinal Cord Injury Model System Center (UAB-SCIMS) provides links to research information as a community service to researchers and individuals with SCI. The UAB-SCIMS does not necessarily endorse or support any of the projects that are listed.

 

5.8. Miami Project to Cure Paralysis

Check out the Miami Project to Cure Paralysis 

What Are Clinical Trials?

Clinical research is designed to answer specific questions about dysfunction and its treatment in humans. These questions may concern the cause of a medical or psychological condition or study the effectiveness and safety of a novel treatment or device.

Clinical research involves people who voluntarily give informed consent to serve as research participants without whom the research simply could not be done. Though volunteering for research does not guarantee a benefit, people who take part in clinical trials and studies make important contributions to the knowledge of, and progress toward, new treatments for Spinal Cord Injury (SCI) and its related problems.

A clinical trial is a carefully organized and controlled research study designed to test the safety and effectiveness of a novel treatment or device used for the first time for a particular medical or psychological condition.

The Miami Project conducts basic science research (laboratory setting) with the goal of making new discoveries and then translating them into successful clinical treatments for SCI through their Clinical Trials Initiative.

The Miami Project also carries out many clinical studies that address various problems associated with SCI, such as pain, spasticity, fatigue, fertility, fitness, rehabilitation, and other areas of concern for people with SCI. For more information, see "Current Studies". Through this research, scientists strive to discover valuable information about SCI that helps in development of new treatments.

How are Clinical Trials Introduced?

Scientists may invest years in basic science research, first in discovery and design of a new treatment and then in testing through experiments that model human disease. Once investigators complete "proof of concept" experiments, which establish a scientifically sound understanding of how a treatment works and potential benefit, the preclinical phase of research can begin.

The preclinical phase involves further research into the treatment's benefit through experimental models but also evaluates whether the treatment has the potential to cause harm. Investigators explore questions about possible damaging effects, such as the formation of tumors or toxicity from higher doses of a drug. These safety studies are very important to achieve approval to begin testing a new treatment in a human clinical trial.

Approval to perform human research at a given institution is received from an Institutional Review Board (IRB). An IRB is comprised of faculty, staff, and community members who are charged with ensuring the design of the clinical research is ethical and that the rights of study participants are protected throughout the study. Some clinical research also requires the approval of a governmental regulatory agency, such as the Food and Drug Administration (FDA) in the United States. Before a new treatment can be marketed as a treatment for a particular condition in the United States, it must be proven safe and effective. The FDA is responsible for ensuring the safety and effectiveness of all drugs, biologics, vaccines, and medical devices.

Clinical Trial Phases

Once a new treatment is approved for first time use in a clinical trial, the treatment will undergo evaluation in a series of clinical trial phases.

A Phase 1 trial is the first step and is designed primarily to evaluate the safety of a drug or treatment in humans. Safe dosage range and side effects are identified. Usually, a Phase 1 trial involves a few healthy volunteers and takes place at only one or two locations, but can include those with the target condition. Investigators use the study results to decide on the best dose and refine procedures for use in further testing.

After completing a Phase 1 trial, investigators will decide whether to seek approval to continue with a Phase 2 trial. A Phase 2 trial will expand the study to a larger group of people with the target condition and compare the results to those of a control group. Those in the control group will receive either the standard treatment or a placebo treatment – an inactive substance. The major goal of Phase 2 is to decide if the treatment is effective and to evaluate further its safety. A few hundred people may participate.

If the results of Phase 1 and 2 are promising, a Phase 3 trial may be sought with an even larger and more diverse group of people with the target condition. The goal of this phase is to confirm effectiveness, monitor side effects, and collect information that will allow safe use of the drug or treatment. Investigators compare the results of the new treatment to that of a standard or placebo treatment. Typically, they will perform a randomized controlled trial in which research volunteers are assigned randomly to either a group that receives the new treatment or a control group that receives the standard or placebo treatment. Several hundred to thousands of people may take part.

The final clinical trial phase is a Phase 4 trial. A Phase 4 trial is conducted to evaluate the ongoing long-term safety and effectiveness of a treatment in large and varied populations and to study additional uses of the drug or treatment. This phase usually takes place after the treatment has been made available to doctors and been approved for standard use in treating at least one condition. Hundreds to thousands of people may take part.

Clinical Research Protocols

All clinical trials and studies have a protocol – a careful set of rules that set forth how the clinical experiment is to be conducted. The protocol specifies the treatment procedures and doses, the route of administration, the number of participants, the specific inclusion and exclusion criteria that define who may enroll in the study, the duration of the study, and the schedule of the tests or interventions that will measure the results. In trials and studies for SCI, examples of inclusion criteria might be the volunteer's level and type of injury, the time since injury, age, and gender.

An important part of the clinical protocol is the informed consent, which is an ongoingprocess that gives people ample opportunity to learn the important facts about a clinical trial so they can decide whether to begin or continue participation. During this process, an investigator explains what will happen to the research volunteer. Depending on the treatment under investigation, research volunteers may or may not experience a direct benefit because of their participation.

- See more at: http://www.themiamiproject.org/research/what-are-clinical-trials/#sthash.JiQBvKiR.dpuf 

5.9. Unite 2 Fight Paralysis

Information on clinical trials from around the world was compiled by a dedicated group of volunteers for the benefit of the spinal cord injury community, and is updated regularly.  Unite 2 Fight Paralysis does not imply or infer an endorsement or recommendation of any of the research listed.

United2Fight trials

For information on additional clinical trials, please visit the clinicaltrials.gov website. There is also a search feature that allows you to search for clinical trials by location.

Questions and comments are welcome and should be directed to: trials@unite2fightparalysis.org

(Feb 2016)

6.1. Coverage for Experimental Technologies (1995)

In this paper in PDF format the authors argue that had insurers, including Medicare, not paid the costs associated with “unproven” technologies in the past, many of the innovations for which American medicine is lauded might not have come to pass.

6.2. Appeal for Experimental Procedures

This article explains terminology to help you overcome the challenges that can arise when your medical needs are not covered by your health insurance.

6.3. Experimental Cure Tough Choices (1999)

Article from the Seattle Times Extra "Experimental cures mean tough choices for health insurers"

7.1. Unite 2 Fight Paralysis

Unite 2 Fight Paralysis exists to unite and empower the international spinal cord injury community to cure paralysis through advocacy, education, and support for research. United 2 Fight Paralysis offers multiple ways to learn about the latest research including podcasts, newsletters, and their annual Working 2 Walk Symposium. Their CureCast podcasts cover a wide range of SCI research approaches. 

Contact Information:

Unite 2 Fight Paralysis
528 Hennepin Ave. Suite 606
Minneapolis, MN 55403

Email: unite@u2fp.org
Phone: 1-888-564-2228

 

7.2. Miami Project to Cure Paralysis

The Miami Project to Cure Paralysis is a premier spinal cord injury research center. The Miami Project's international team of more than 175 scientists, researchers and clinicians take innovative approaches to the challenge of spinal cord injury. Miami Project researchers conducting clinical studies and trials in spinal cord injury, including testing neuroprotective strategies, cellular therapies, and advanced rehabilitation and neuromodulation approaches.

7.3. Christopher & Dana Reeve Foundation

The Reeve Foundation's research platforms are developing and delivering treatments and cures for spinal cord injury.

7.4. CenterWatch - Clinical Trials information

Global source of news, directories, proprietary market research, and analysis for clinical trials professionals and patients.

7.5. Mike Utley Foundation

The mission of the Mike Utley Foundation is to financially support an effective function-restoring treatment for spinal cord injuries, to encourage through education that of adopting a rehabilitative lifestyle for the spinal cord injured and a public awareness of spinal cord injuries.

8.1. Spinal Cord Injury Research and the Hope for Cure: Where are we Today? (2013)

2013 Spinal Cord Injury Wellness Summit

Keynote address:

SCI Research and the Hope for Cure: Where Are We Today?

By Daniel Lammertse, MD

Internationally recognized as an expert in SCI rehabilitation, Dr. Lammertse is a Clinical Professor of Physical Medicine and Rehabilitation at the University of Colorado, Denver, and Medical Director of Research at Craig Hospital, where he is co-director of the Rocky Mountain Regional SCI System. In his talk, he lucidly explains the complex issues involved in SCI recovery, reviews the current state of SCI cure research worldwide, discusses the most promising avenues of investigation, and clarifies potential risks of participating in expensive experimental treatments available outside the U.S. Dr. Lammertse's talk was the keynote address at 2013 SCI Wellness Summit, which took place on May 18, 2013 at the University of Washington Medical Center, Seattle.

8.2. Spinal Cord Injury Research Evidence (SCIRE)

The Spinal Cord Injury Research Evidence (SCIRE) is a synthesis of the research evidence underlying rehabilitation interventions to improve the health of people living with SCI. SCIRE covers a comprehensive set of topics relevant to SCI rehabilitation and community re-integration.

The Spinal Cord Injury Research Evidence (SCIRE) project is a Canadian collaboration between scientists, clinicians and consumers in Vancouver, British Columbia and London, Ontario and their respective health centres (GF Strong Rehab Centre, St. Joseph's Health Care), research institutions (International Collaboration on Repair Discoveries, Lawson Health Research Institute) and universities (University of BC, University of Western Ontario).

 

8.3. CareCure Forums - Article Abstracts

The Research Forums lists abstracts of the latest scientific articles on brain injury & stroke, neurodegeneration, multiple sclerosis, neuropathic pain, spinal cord injury, stem cells, and tranverse myelitis. Exchange information about Clinical Trials, Equipment & Services, Doctors & Clinics.

8.4. Hope Through Research (NINDS)

This brochure by the National Institute of Neurological Disorders and Stroke (NINDS) has been written to explain what happens to the spinal cord when it is injured, the current treatments for spinal cord injury patients, and the most promising avenues of research currently under investigation. 

8.5. Research: Stem Cells

Research: Stem Cells, is a brochure produced by Craig Hospital, a Spinal Cord Injury Model Systems Center.  Revised 1/15.

8.6. Stem Cell Therapies

Stem Cell Therapies

Will stem cell therapies be safe and effective for treating spinal cord injuries?
A large number of different cells, including embryonic and adult stem cells, have been transplanted into animals with SCI, and in many cases these procedures have resulted in modest sensorimotor benefits. This review article examines some of the publically available preclinical evidence that some of these cell types improve outcome in animals with SCI. Transplantation of many different types of stem and progenitor cells acutely after SCI enhances spontaneous recovery of function in animals. The common mechanism(s) of this enhanced recovery of function are not well understood, although a range of possibilities are usually cited (including preservation of tissue, remyelination, axon sprouting, glial cell replacement). There is no agreement about the best cell type for transplantation. Transplantation of cells into animals with a long lifespan is important to determine whether or not tumors will eventually form. It will also be important to determine whether long-term survival of cells is required for functional recovery.
Thomas KE, Moon LD.
Br Med Bull. 2011;98:127-42.

How to obtain complete article

You may obtain copies of the complete article through your local medical library or through the University of Washington Health Sciences Library Document Service at 206-543-3441 or http://healthlinks.washington.edu/hsl/docservices/illiad.htm. (There is a fee for this service.)

 

8.7. Survive, Subsist, Succeed: Spinal Cord Injury

Survive, Subsist, Succeed: Spinal Cord Injury

An 80+ minute video presentation by John D. Steeves, PhD, Professor and Founding Director, ICORD (International Collaboration On Repair Discoveries), and UBC and Vancouver Coastal Health, Vancouver, BC.  In this presentation, Dr. Steeves addresses questions about fact vs fiction, near term vs long term in relation to research and provides an overview of the SCI research that has taken us from merely surviving spinal cord injuries—rare before World War II—to thriving with SCI and even the possibility of recovery. He brings over 30 years' experience as a spinal cord researcher to explain and discuss recent experimental treatments for SCI.

This lecture was given on May 20, 2010 at University of Washington Medical Center by the Northwest Regional SCI System, Department of Rehabilitation Medicine, University of Washington.

9.1. Cure Paralysis Now

CureAdvocacy is a grassroots organization that believes a cure for paralysis can be achieved in this decade.

9.2. Step Now

The purpose of the site is to explore and develop global plans to aid in the fight for a cure for paralysis.

9.3. Spinal Cord Society

SCS is a large grass roots organization linked by a monthly Newsletter, and thousands of members throughout North America and other countries. Its goal is cure of chronic spinal cord injury paralysis.

9.4. Unite 2 Fight Paralysis

Unite 2 Fight Paralysis is a nonprofit organization dedicated to the education, unification and empowerment of all survivors of paralysis.

10.1. 'One Degree of Separation' paralysis survey 2009

'One Degree of Separation': Paralysis and Spinal Cord Injury in the United States.

10.2. National SCI Statistical Center (At UAB)

The UAB Department of Physical Medicine and Rehabilitation is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) to operate the National Spinal Cord Injury Statistical Center (NSCISC). NSCISC supports and directs the collection, management and analysis of the world's largest and longest spinal cord injury research database. In addition to maintaining the national SCI database, NSCISC personnel conduct ongoing, database-oriented research. Many of the findings resulting from these investigative efforts have had significant impact on the delivery and nature of medical rehabilitation services provided to SCI patients.

"Traumatic Spinal Cord Injury Facts and Figures at a Glance, 2024" is a publication of the National Spinal Cord Injury Statistical Center, Birmingham, Alabama. Much additional SCI statistical data and annual reports can be accessed from this page.
The NSCISC Life Expectancy Calculator allows you to perform a more accurate personal life expectancy assessment.

 

10.3. Annual Disability Statistics Compendium

The Annual Disability Statistics Compendium is a web-based tool that pools disability statistics published by various federal agencies together in one place. When working on legislative and other matters relating to persons with disabilities, the Compendium will make finding and using disability statistics easier.

10.4. Geography of Disability

The NIDILRR-funded Rehabilitation Research and Training Center on Disability in Rural Communities (RTC: Rural) has published findings from the Geography of Disability Project on their website. The objective of the study was to depict the distribution and demographics of people with disabilities living in rural areas and the services available to them. A number of map formats are available. 

11.1. Miami Project SCI Tissue Bank

The Miami Project requires advance planning if you, or someone you know, chooses to donate his or her spinal cord to tissue research.