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Research about SCI/D

• 1. Studies Currently Recruiting People with SCI/D or SCI Clinicians
  • 1.1. United Spinal Disclaimer
  • 1.2. Scale up Trial of Project WOWii to Increase Exercise Among People with Spinal Cord Injury
  • 1.3. Build with us the next generation of hands-free walking exoskeleton
  • 1.4. Identity-First Language or Person-First Language
  • 1.5. Research Study on the Experiences of Social Media and Connectedness
  • 1.6. Standardizing a Core Set of Patient Reported Outcomes for Spinal Cord Injury Care-McGill University
• 2. Functional Electrical Stimulation (FES)
  • 2.1. FES Equipment-Myolyn
  • 2.2. FES Equipment-Restorative Therapies
  • 2.3. FES Promotes Recovery in Chronic SCI
  • 2.4. Transcutaneous Stimulation
• 3. Understanding SCI research
  • 3.1. SCI2020-Decade of Disruption in Research-Event Video Archived
  • 3.2. Understanding Research: Those Scary Statistics
  • 3.3. Understanding Research: Medical & Research Articles
  • 3.4. The Controversy Over Walking & Research
• 4. United Spinal Association Research Related Webinars
  • 4.1. All You Need to Know About Direct Nerve Stimulation 7/20/16
  • 4.2. "Becoming a Lab Rat" – Lessons learned from participating in a Clinical Trial- 09/25/13
  • 4.3. Breakthroughs in Stem Cell Therapies 10/23/14
• 5. General research information
  • 5.1. Model Systems Knowledge Translation Center
  • 5.2. National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)
  • 5.3. NIH Clinical Research Trials and You
• 6. Specific research information
  • 6.1. BrainGate Neural Interface System
  • 6.2. Lower Extremity Functional Electrical Stimulation Cycling study
  • 6.3. Regeneration & Repairing Adult Stem Cells
  • 6.4. Review of SCI Human Trials
  • 6.5. Spinal Cord Implant Allows Paraplegics to Walk Again, Scientists Say-February 2022
  • 6.6. UNC - Spinal Motor Neurons
  • 6.7. Women with disabilities
• 7. Learn about Participation in SCI Research
  • 7.1. Experimental Treatments for Spinal Cord Injuries: What you should know if you are considering participation in a clinical trial.
  • 7.2. How do I learn if a therapy is valid and safe
  • 7.3. Stem Cell Treatments: What to Ask
  • 7.4. 60 Minutes expose on stem cell program fraud
  • 7.5. Video: Geron Stem Cell Clinical Trial Participant Shares Her Experience
• 8. Where do I find ongoing research studies?
  • 8.1. Institute for Functional Restoration
  • 8.2. SCITrials.org
  • 8.3. SCITrialsFinder.net
  • 8.4. ClinicalTrials.gov
  • 8.5. California Institute for Regenerative Medicine
  • 8.6. SCIRE: SCI Research Evidence
  • 8.7. UAB Spinal Cord Injury Model System Information Network
  • 8.8. Miami Project to Cure Paralysis
  • 8.9. Unite 2 Fight Paralysis
• 9. Will my insurance reimburse for participating in SCI research?
  • 9.1. Coverage for Experimental Technologies (1995)
  • 9.2. Appeal for Experimental Procedures
  • 9.3. Experimental Cure Tough Choices (1999)
• 10. Websites to learn about SCI research
  • 10.1. Unite 2 Fight Paralysis
  • 10.2. Miami Project to Cure Paralysis
  • 10.3. Christopher & Dana Reeve Foundation
  • 10.4. CenterWatch - Clinical Trials information
  • 10.5. Mike Utley Foundation
• 11. Articles and Videos about SCI research
  • 11.1. Spinal Cord Injury Research and the Hope for Cure: Where are we Today? (2013)
  • 11.2. Spinal Cord Injury Research Evidence (SCIRE)
  • 11.3. CareCure Forums - Article Abstracts
  • 11.4. Hope Through Research (NINDS)
  • 11.5. Research: Stem Cells
  • 11.6. Stem Cell Therapies
  • 11.7. Survive, Subsist, Succeed: Spinal Cord Injury
• 12. Advocacy Groups
  • 12.1. Cure Paralysis Now
  • 12.2. Step Now
  • 12.3. Spinal Cord Society
  • 12.4. Unite 2 Fight Paralysis
• 13. SCI Statistical sources
  • 13.1. 'One Degree of Separation' paralysis survey 2009
  • 13.2. National SCI Statistical Center (At UAB)
  • 13.3. Annual Disability Statistics Compendium
  • 13.4. Geography of Disability
• 14. Advance Directives (donating your spinal cord for scientific research)
  • 14.1. Miami Project SCI Tissue Bank

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