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8.7. References

REFERENCES

Overview

• Alexander, M. (2017). Sexual Sustainability: A guide to having a great sex life with a spinal cord disorder [Kindle ebook]. Amazon.com Services LLC. https://www.amazon.com/Sexual-Sustainability-having-spinal-disorder-ebook/dp/B077HT5YQH

• Alexander, M. (2018). Sexual Sustainability After SCI [Webinar]. United Spinal Association. https://unitedspinal.org/webinar/sexual-sustainability-after-sci/

• Alexander, M., Courtois, F., Elliott, S., & Tepper, M. (2017). Improving sexual satisfaction in persons with spinal cord injuries: collective wisdom. Topics in Spinal Cord Injury Rehabilitation,  23(1), 57–70. https://doi.org/10.1310/sci2301-57

• Carlson, T. (2013, March 9). Sex Do you still enjoy it?. New Mobility. https://www.newmobility.com/2013/03/sex-do-you-still-enjoy-it/

• Consortium for Spinal Cord Medicine. (2010). Sexuality and reproductive health in adults with spinal cord injury: a clinical practice guideline for health-care professionals. The journal of spinal cord medicine, 33(3), 281–336. https://doi.org/10.1080/10790268.2010.11689709

• Consortium for Spinal Cord Medicine. (2011). Sexuality and reproductive health in adults with spinal cord injury: what you should know. Paralyzed Veterans of America, Washington, DC; Available at: www.PVA.org

• Courtois, F., Alexander, M., & McLain, A. B. (2017). Women's sexual health and reproductive function after SCI. Topics in spinal cord injury rehabilitation, 23(1), 20-30. https://doi.org/10.1310/sci2301-20

• Craig Hospital. (2020, January). Sexual function for men after spinal cord injury. https://craighospital.org/resources/sexual-function-for-men-after-spinal-cord-injury

• Craig Hospital. (2020, January). Sexual function for women after spinal cord injury. https://craighospital.org/resources/sexual-function-for-women-after-spinal-cord-injury

• Afferi L, Pannek J, Louis Burnett A, et al. Performance and safety of treatment options for erectile dysfunction in patients with spinal cord injury: A review of the literature. Andrology. 2020 Nov;8(6):1660-1673. https://doi.org/10.1111/andr.12878

• Hess, M. J., & Hough, S. (2012). Impact of spinal cord injury on sexuality: broad-based clinical practice intervention and practical application. The Journal of Spinal Cord Medicine, 35(4), 211–8. https://doi.org/10.1179/2045772312Y.0000000025

• Karp, G. (2013, Feb 1). What Great Sex Really Is: A Journey from Teenage Paralysis. New Mobility. https://www.newmobility.com/2013/02/spinal-cord-injury-and-sex/

• Linton, R. (2017, Feb 1). Women’s Pleasure. New Mobility. https://www.newmobility.com/2017/02/womens-pleasure/ 
  
  
• Linton, R. (2020, Feb 3). Self-Image and Intimacy: Beating the Body Rut. New Mobility. https://www.newmobility.com/2020/02/self-image-and-intimacy/

• Lollino, S. (2015, Feb 1). Sex, Women and SCI. New Mobility. https://www.newmobility.com/2015/02/sex-women-sci/

• Model Systems Knowledge Translation Center (MSKTC). (2015). Sexuality & Sexual Functioning after SCI. https://msktc.org/sci/factsheets/sexuality

• Mount Sinai Hospital. (2018). Sexuality after SCI. https://www.sexualitysci.org/

• Previnaire, J. G., Soler, J. M., Alexander, M. S., Courtois, F., Elliott, S., & McLain, A. (2017). Prediction of sexual function following spinal cord injury: a case series. Spinal Cord Series and Cases, 3(1), 1-7.

• Tepper, M. (2015, Feb 1). The Process of Sexual Self-Discovery. New Mobility. https://www.newmobility.com/2015/02/sexual-self-discovery

• Tolan, M. (2017, Feb 1). Christine Selinger: Conversations About Sex. New Mobility. https://www.newmobility.com/2017/02/conversations-sex-disability/

Relationships & Dating Section

• Airey, C. (2018). Dating with a Spinal Cord Injury: An IPA Study (Doctoral dissertation, City, University of London).

• Byzek, J. (2001, Feb 1). Committed Couples. New Mobility. https://www.newmobility.com/2001/02/committed-couples/

• Byzek, J. (2013, Feb 1). Sex, Wheels & Relationships: Here Comes the Bride... and Bride. New Mobility. https://www.newmobility.com/2013/02/here-comes-the-bride-and-bride/

• Carlson, T. (2013, Nov 1). What Should You Really Put In That Dating Profile? New Mobility. https://www.newmobility.com/2013/11/really-put-dating-profile/

• Craig Hospital. (2015). Long term caregivers: For better and for worse. https://craighospital.org/resources/long-term-caregivers-for-better-and-for-worse

• Eglseder, K., & Demchick, B. (2017). Sexuality and spinal cord injury: the lived experiences of intimate partners. OTJR: Occupation, Participation and Health, 37(3), 125-131. https://doi.org/10.1177/1539449217701394

• Facing Disability. (n.d.). Spinal Cord Injury Videos by Topic. Coping with Spinal Cord Injury |Video and Resources | Facing Disability. https://facingdisability.com/spinal-cord-injury-videos/

• Furlong, R. (2012, Feb 1). Sex, Wheels & Relationships: A Mature Love. New Mobility. https://www.newmobility.com/2012/02/sex-wheels-relationships/

• Ghenis, A. (2017, May 27). Tips for Mentioning Disability on Dating Apps. New Mobility. https://www.newmobility.com/2017/05/disability-dating-apps/

• Google, Inc. (2020, May 21). Find wheelchair accessible places with Google maps. https://www.blog.google/products/maps/wheelchair-accessible-places-google-maps/

• Hupe, E. (2020, Feb 3). How to Keep the Flame Burning. New Mobility. https://www.newmobility.com/2020/02/how-to-keep-the-flame-burning/

• IAccess Life. (2020, April 21). Best apps for wheelchair users & caregivers. https://www.iaccess.life/best-apps-for-wheelchair-users-caregivers/

• IAccess Life. (2020, April 21). How to find wheelchair accessible restaurants near you. https://www.iaccess.life/how-to-find-wheelchair-accessible-restaurants-near-you/

• Jeyathevan, G., Cameron, J. I., Craven, B. C., Munce, S. E., & Jaglal, S. B. (2019). Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients. BMC neurology, 19(1), 1-13. https://doi.org/10.1186/s12883-019-1347-x

• McBride, S. (2019, Feb 1). New Mobility Guide to Online Dating. New Mobility. https://www.newmobility.com/2019/02/guide-to-online-dating-with-disability/

• McCarthy, K. (2018). Dating as an Occupation: Swipe Right for Occupational Therapy. OT Practice, 23(4), 12.

• Mattlin, B. (2015, Oct 1). Inter-Abled Couples: Challenges and Joys. New Mobility. https://www.newmobility.com/2015/10/inter-abled-couples/

• Ruder, I. (2020, Jan 1). What Caregivers Care About. New Mobility. https://www.newmobility.com/2020/01/what-caregivers-care-about/

• Santinele Martino, A. (2017). Cripping sexualities: an analytic review of theoretical and empirical writing on the intersection of disabilities and sexualities. Sociology Compass,11(5). https://doi.org/10.1111/soc4.12471

• Spinal Cord Injury BC. (2019, September 20). Relationships. SCI Sexual Health. https://scisexualhealth.ca/relationships/

• New, P. W. (2019). Sexual and Body Esteem in People with Spinal Cord Damage. Sexuality and Disability, 37(1), 3-14. https://doi.org/10.1007/s11195-018-09553-4

Medical Considerations Page

Sexually Transmitted Infections and Safe Sex

• Consortium for Spinal Cord Medicine. (2010). Sexuality and reproductive health in adults with spinal cord injury: a clinical practice guideline for health-care professionals. The Journal of Spinal Cord Medicine, 33(3), 281–336. https://doi.org/10.1080/10790268.2010.11689709

• Consortium for Spinal Cord Medicine. (2011). Sexuality and reproductive health in adults with spinal cord injury: what you should know. Paralyzed Veterans of America, Washington, DC; Available at: www.PVA.org

• Spinal Cord Injury BC. (2020, January 28). Contraception. SCI Sexual Health. https://scisexualhealth.ca/contraception/

Mental Health and Sexuality

• Model Systems Knowledge Translation Center (MSKTC). (2010). Depression and spinal cordinjury. https://msktc.org/sci/factsheets/depression

• Peter, C., Müller, R., Cieza, A., & Geyh, S. (2012). Psychological resources in spinal cordinjury: a systematic literature review. Spinal Cord, 50(3), 188-201. https://doi.org/10.1038/sc.2011.125

• Post, M. W. M., & Van Leeuwen, C. M. C. (2012). Psychosocial issues in spinal cord injury: a review. Spinal Cord, 50(5), 382-389. https://doi.org/10.1038/sc.2011.182

Autonomic Dysreflexia

• Allen KJ, Leslie SW. Autonomic Dysreflexia. [Updated 2020 May 28]. In: StatPearls [Internet]. Treasure Island (FL): StatPearls Publishing; 2020 Jan. Available from: https://www.ncbi.nlm.nih.gov/books/NBK482434/

• Courtois, F., Rodrigue, X., Côté, I., Boulet, M., Vézina, J. G., Charvier, K., & Dahan, V. (2012). Sexual function and autonomic dysreflexia in men with spinal cord injuries: how should we treat? Spinal Cord, 50(12), 869-877. https://doi.org/10.1038/sc.2012.83

• Elliott, S., & Krassioukov, A. (2006). Malignant autonomic dysreflexia in spinal cord injured men. Spinal Cord, 44(6), 386-392. https://doi.org/10.1038/sj.sc.3101847

• Consortium for Spinal Cord Medicine (2020).  Evaluation and Management of Autonomic Dysreflexia and Other Autonomic Dysfunctions: Preventing the Highs and Lows. Paralyzed Veterans of America, Washington, DC; Available at: www.PVA.org

Skin

• Hess, M. J., & Hough, S. (2012). Impact of spinal cord injury on sexuality: broad-based clinical practice intervention and practical application. The Journal of Spinal Cord Medicine, 35(4), 211-218. https://doi.org/10.1179/2045772312Y.0000000025

• Nummenmaa, L., Suvilehto, J. T., Glerean, E., Santtila, P., & Hietanen, J. K. (2016). Topography of human erogenous zones. Archives of sexual behavior, 45(5), 1207-1216. https://doi.org/10.1007/s10508-016-0745-z

• Sramkova, T., Skrivanova, K., Dolan, I., Zamecnik, L., Sramkova, K., Kriz, J., ... & Fajtova, R. (2017). Women's sex life after spinal cord injury. Sexual medicine, 5(4), e255-e259. https://doi.org/10.1016/j.esxm.2017.07.003

Continence: Bladder

• Anderson, K. D., Borisoff, J. F., Johnson, R. D., Stiens, S. A., & Elliott, S. L. (2007). Spinal cord injury influences psychogenic as well as physical components of female sexual ability. Spinal Cord, 45(5), 349-359. https://doi.org/10.1038/sj.sc.3101979

• Chapple, A., Prinjha, S., & Salisbury, H. (2014). How users of indwelling urinary catheters talk about sex and sexuality: a qualitative study. British Journal of General Practice, 64(623), e364-e371. https://doi.org/10.3399/bjgp14X680149

• Cramp, J. D., Courtois, F. J., & Ditor, D. S. (2015). Sexuality for women with spinal cord injury. Journal of sex & marital therapy, 41(3), 238-253. https://doi.org/10.1080/0092623X.2013.869777

• Kreuter, M., Taft, C., Siösteen, A., & Biering-Sørensen, F. (2011). Women's sexual functioning and sex life after spinal cord injury. Spinal cord, 49(1), 154-160. https://doig.org/10.1038/sc.2010.51

Continence: Bowel

• Benevento, B. T., & Sipski, M. L. (2002). Neurogenic bladder, neurogenic bowel, and sexual dysfunction in people with spinal cord injury. Physical therapy, 82(6), 601-612. https://doi.org/10.1093/ptj/82.6.601

• Coggrave, M. J., Ingram, R. M., Gardner, B. P., & Norton, C. S. (2012). The impact of stoma for bowel management after spinal cord injury. Spinal Cord, 50(11), 848–52. https://doi.org/10.1038/sc.2012.66

• ConvaTec. (2020). Intimacy with an ostomy. 
  https://www.convatec.ca/ostomy/living-with-an-ostomy/intimacy/

• Francis, K. (2007). Physiology and management of bladder and bowel continence following spinal cord injury. Ostomy Wound Management, 53(12), 18.
  
  
• Hollister. (2018). Sex after ostomy surgery: Do’s and don’ts. https://www.hollister.com/en/ostomycare/ostomylearningcenter/livingwithanostomy/sexafterostomysurgerydosanddonts

• Hughes, M. (2014). Bowel management in spinal cord injury patients. Clinics in Colon and Rectal Surgery, 27(3), 113–115. https://doi.org/10.1055/s-0034-1383904

• Krassioukov, A., Eng, J. J., Claxton, G., Sakakibara, B. M., & Shum, S. (2010). Neurogenic bowel management after spinal cord injury: a systematic review of the evidence. Spinal Cord, 48(10), 718–33. https://doi.org/10.1038/sc.2010.14

• Skye, V. (2018, Feb 1). Relationship Baggage: Dating with a Colostomy. New Mobility. https://www.newmobility.com/2018/02/dating-with-colostomy/

• Sprunk, E., & Alteneder, R. R. (2000). The impact of an ostomy on sexuality. Clinical Journal of Oncology Nursing, 4(2), 85–8.
  
  
• VeganOstomy. (2018, September 25). Sex with an ostomy: Tips for better intimacy (W/ video). https://www.veganostomy.ca/sex-intimacy-ostomy/

Spasticity & Pain

• Elliott, S., & McBride, K. (2014). Sexual and reproductive health following spinal cord injury. Spinal cord injury rehabilitation evidence, Version 5, 1-84.
  
  
• Hess, M. J., & Hough, S. (2012). Impact of spinal cord injury on sexuality: broad-based clinical practice intervention and practical application. The journal of spinal cord medicine, 35(4), 211-218. https://doi.org/10.1179/2045772312Y.0000000025

• Jones, M. L., Leslie, D. P., Bilsky, G., & Bowman, B. (2008). Effects of intrathecal baclofen on perceived sexual functioning in men with spinal cord injury. The journal of spinal cord medicine, 31(1), 97-102. https://doi.org/10.1080/10790268.2008.11753988

• Kreuter, M., Taft, C., Siösteen, A., & Biering-Sørensen, F. (2011). Women's sexual functioning and sex life after spinal cord injury. Spinal cord, 49(1), 154-160. https://doi.org/10.1038/sc.2010.51

Respiratory

• Model Systems Knowledge Translation Center (MSKTC). (2015, August). Respiratory health and spinal cord injury. https://msktc.org/sci/factsheets/respiratory

• Schönhofer B., Von, S. K., Bucher, T., Nietsch, M., Suchi, S., Köhler D, & Jones, P. W. (2001). Sexuality in patients with noninvasive mechanical ventilation due to chronic respiratory failure. American Journal of Respiratory and Critical Care Medicine, 164(9), 1612–7. https://doi.org/10.1164/ajrccm.164.9.2103020

Functional Mobility & Positioning page

• Anderson, K. D., Borisoff, J. F., Johnson, R. D., Stiens, S. A., & Elliott, S. L. (2007). The impact of spinal cord injury on sexual function: concerns of the general population. Spinal Cord, 45(5), 328–37. https://doi.org/10.1038/sj.sc.3101977
  
  
• Elliott, S., Hocaloski, S., & Carlson, M. (2017). A multidisciplinary approach to sexual and fertility rehabilitation: the sexual rehabilitation framework. Topics in Spinal Cord Injury Rehabilitation, 23(1), 49–56. https://doi.org/10.1310/sci2301-49

• Hess, M. J., & Hough, S. (2012). Impact of spinal cord injury on sexuality: broad-based clinical practice intervention and practical application. The journal of spinal cord medicine, 35(4), 211-218. https://doi.org/10.1179/2045772312Y.0000000025

• Hattjar, B. (2017). Addressing sexual activity: A structured method for assisting clients with intimacy. OT Practice, 22(19), 8–10, 12.
  
  
• Model Systems Knowledge Translation Center (MSKTC). (2020, January). Understanding spinal cord injury: Part 2—Recovery and rehabilitation. https://msktc.org/sci/factsheets/understanding_sci_part_2

• Naphtali, K., MacHattie, E., Krassioukov, A., & Elliott, S. L. (2009). Pleasure ABLE: sexual device manual for persons with disabilities. Disabilities Health Research Network.
  
  
• Rowen, T. S., Stein, S., & Tepper, M. (2015). Sexual health care for people with physical disabilities. The journal of sexual medicine, 12(3), 584-589. https://doi.org/10.1111/jsm.12810
  
  
• Spinal Cord Injury BC. (2020, January 23). Mobility - SCI sexual health site. SCI Sexual Health. https://scisexualhealth.ca/mobility/

• Tepper, M. (2015, July 8). Sex and paralysis video series. Dr. Mitchell Tepper. https://www.drmitchelltepper.com/sex_and_paralysis_video_series

Sexual Aids Page

• Naphtali, K., MacHattie, E., Krassioukov, A., & Elliott, S. L. (2009). Pleasure ABLE: sexual device manual for persons with disabilities. Disabilities Health Research Network.